Some with hyperadrenergic pots even report an increase in blood pressure while on beta blockers. POTS may have multiple causes, Dr. Blitshteyn says. He walked in the examining room and hugged me! As most of you know I was diagnosed with Postural Orthostatic Tachycardia Syndrome [POTS] in 2009. I explained my painful journey dealing with this disorder. There is no blood test right now to aid in the diagnosis. We took family vacations, and I was able to cook dinner again for my family. If he thought he could help me, they would contact me. We now might have the ability to diagnosis this, or at least have an inkling. It helps with the low seratonin levels that … His office … When I first became sick, I suffered from severe tremors that made me look like I was having seizures. Grubb’s 2011 study described hyperadrenergic POTS as having an increase in systolic blood pressure of ≥ 10 mm Hg during a tilt table test with rapid heart beat (tachycardia) or serum norepinephnrine levels that were greater than 600 pg/mL upon standing. I went to lunch and the movies. A few days after each visit with Dr. Grubb, he would send something in the mail. P.S. ScienceDaily shares links with sites in the. I would like to thank Dr. Andrew Rosen for his patience and understanding, Dr. Lisa Perdue for her compassion and insight, and Tatiana for her healing spirit. Views expressed here do not necessarily reflect those of ScienceDaily, its staff, its contributors, or its partners. Questions? The phone rang in May 2010. Young women are disproportionately affected, with nearly 80–85% of cases occurring in women and most of childbearing age (Garland et al., 2007). Dr. Grubb is a world-renowned cardiologist whose expertise in syncope (unexplained and unpredictable fainting), leads people from across the United States and around the world to The University of Toledo Medical Center seeking compassionate and leading edge treatment. The frequency and severity of syncope also improved. A handful of patients showed elevated levels against all nine. It took almost a year and a half to finally get the correct diagnosis. The result is excessive norepinephrine serum spillover with sympathetic stimulation resulting in a relative hyperadrenergic state appearing similar to pheochromocytoma. POTS was defined as symptoms of orthostatic intolerance (of … I could do it! I haven't been on here in quite some time. No drug has yet been FDA approved for POTS, but an old drug is helping and a new drug to the U.S. is making quite a splash. New research from The University of Toledo College of Medicine and Life Sciences strongly suggests postural orthostatic tachycardia syndrome, or POTS, is an autoimmune disorder and may help pave the way for a simple blood test that could help physicians diagnose the condition. I take Cymbalta which is also on that list (although I have taken it for a couple of years.....before I even heard of POTS). His name was Dr. Blair Grubb, my angel in a white coat. The dark clouds were beginning to part. For my birthday this year I got a bike. Over the next 6 months my daily symptoms started to get better. North Carolina . We exchanged email addresses, and we still talk on a regular basis. My sister told me about a doctor in Toledo, Ohio who specialized in Hyperadrenergic POTS and had a high rate of success in treating his patients. William T. Gunning, Heather Kvale, Paula M. Kramer, Beverly L. Karabin, Blair P. Grubb. But you can send us an email and we'll get back to you, asap. 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